Jennie K.
Three Years of Feeling Like Just Another Number
After approximately three years as a patient of Optum Infusion Pharmacy, I have made the difficult decision to transfer my care to another infusion provider. This decision is not based on one mistake or one bad experience. It is based on a patient experience that has been remarkably consistent for three years. Patients who are sick should never be made to feel like a number. Whenever prior authorizations or changes in therapy have been involved, I have repeatedly found myself having to manage the process from the patient side: call for an update, wait, call again, email, wait again, and eventually escalate when I cannot get answers. Far too often, I have had to figure out for myself where something has stalled and then continue following up until someone takes action. Patients should not have to call, call again, email, escalate, and practically beg for updates about medically necessary treatment. An organization serving as many patients as Optum does should have systems in place to track a patient's care, identify when something has stalled, communicate between departments, and proactively keep patients informed. Even when there is no new information, a simple update telling a patient where things stand and when they can expect to hear from someone again makes an enormous difference. Instead, my experience has repeatedly been that if I don't initiate the communication, I often receive none. My current transition from SCIG back to IVIG following brain surgery was ultimately the final straw. Once again, I have spent an extraordinary amount of time making calls, sending messages, identifying problems, and trying to keep the process moving while I am getting weaker without my infusions. Patients dealing with significant medical conditions should be able to concentrate on being patients. They should not also have to function as their own authorization specialist, case manager, and quality-control department just to make sure their prescribed treatment continues. I do want to distinguish between Optum's system and some of the wonderful individuals working within it. Mary at the Charleston pharmacy has been absolutely amazing to me, and my nurse has been exceptional. I am genuinely sad to leave them. My criticism is not directed toward the people who have personally cared for me so well. It is directed toward a system that, in my experience over three years, has consistently failed to provide the communication and care coordination its patients deserve. Mistakes happen in every organization. What matters is having processes in place to catch those mistakes, correct them, communicate with the patient, and prevent people from falling through the cracks. After three years, I simply no longer have confidence in Optum Infusion Pharmacy's ability to do that consistently. Today, I began the process of transferring my care back to a previous infusion pharmacy. Patients deserve to feel cared for, informed, and remembered. They should never feel like just another number in a very large healthcare system. I am deeply disappointed that this has been my experience with Optum.


